In 2023, I was diagnosed with Multiple System Atrophy (MSA)—a rare, terminal neurological disease that affects the body’s movement, balance, and automatic functions. There is no cure, and awareness of MSA is painfully limited despite the devastating toll it takes on individuals and families.

Before my diagnosis, I loved my life and lived it fully. Everything changed when MSA entered our story, and I know life will never be the same. I am no longer the mom, wife, and friend I once was—full of energy and possibility. My husband has been my greatest source of support, and his love means everything to me. Our marriage was as close to perfect as any could be, built on the dream of a healthy future together. That dream has been altered, but our love remains.

My grown children have their own lives, and while I don’t want to speak for them, it sometimes feels as though ignoring my illness makes it less real. But MSA is real. It is cruel, it is relentless, and it deserves to be known.

Through it all, my faith sustains me. I write songs and lyrics to express my love for Jesus, my Savior, and to remind myself that there is hope beyond this life. This blog is where I share my journey—not just to raise awareness of a disease many don’t even know exists, but also to shine a light of faith, love, and resilience in the midst of it.

I invite you to follow along, to learn, and to walk with me in this journey. Together, we can make MSA known.